Palliative care for the lay population: educational aspects of interventions

Abstract

The aim was to develop two innovative instruments to assess and improve the knowledge of the lay population about Palliative Care (PC) in Brazil: the CAP-CP-PL Questionnaire and a Guiding Model for the creation of personalized educational materials. The methodology consisted of an exploratory research with an integrative literature review, which revealed a gap in materials on the subject for the lay public. From there, the two instruments were developed and validated with experts. The questionnaire, structured in sections that assess knowledge, attitudes, and perceptions, serves to diagnose the level of understanding of the community. The results of this application, in turn, feed into the guiding model, an instructional design tool that guides the creation of educational resources (such as booklets, videos, or comics) adapted to the sociocultural profile and specific needs identified. In the discussion, it is concluded that the proposed innovation responds to the urgency of popularizing public health, as foreseen in the National Policy, by offering a systematic method to demystify concepts, guide public policies and, fundamentally, personalize health education, ensuring that information reaches the population in an accessible and effective way, becoming a right in fact and not just in theory.